So now it's healing time.... time to heal from the last 6 months of craziness. My doctors look at things in 3 month phases. So, in mid-February I should be able to come off a few of the 12 medicines that I take every day and be out of the woods for some (but not all) of the complications that come up after a transplant. I'll still be on some of the anti-rejection/anti-infection medicines and need to go for regular clinic visits for a year or longer. In another 3 months I should have enough of an immune system built up and the stamina to return to work, which I'm looking forward to. RAPP, the company that I work for, has been amazingly understanding and supportive during all of this. I count my boss and all the employees there as just a few of my many angels making my recovery possible.
Right now I'm continuing my weekly trips to the UCLA Oncology clinic in LA for blood tests and doctor visits. Depending on the blood test results I might get some sort of treatment through IV that day. This week my tests were good except my hemoglobin was low so I needed a blood transfusion. My liver and kidney function has stabilized from the problems I had a few weeks ago. Needing blood transfusions in the first 100 days after a bone marrow/stem cell transplant is normal because I'm still not fully producing red blood cells from my sister's stem cells. And any new red blood cells are being broken down a bit while they destroy any of my own residual red blood cells left in my body. Kurt said it's because my sister and I are both stubborn that our cells are duking it out. But I'm going to let her win this one. ;-)
I also still get weekly visits from a home nurse who gives me another IV of antibodies to pump up my immune system. Right now I have the immune system of a 2 1/2 month old. Pretty amazing. But also pretty young. So I still need to stay healthy and avoid crowds, kids, sick people and people who recently got immunizations. Needless to say, I go through a lot of anti-bacterial hand cleaner.
I received some more good news from my doctor. Barring any unforeseen circumstances, she thinks I'll be ok to travel by the end of March so I'll be flying home to Ohio to be a bridesmaid in my best friend, Nikki's wedding. We hadn't been sure whether I would be able to do it so it's very exciting to make plans to be a part of my friend's special day. It's now Operation "Grow Hair" for the wedding since I'm hoping to have a pixie cut by then so that I don't have to fool around with a wig. My hair's growing back pretty fast. Right now I have a bit of a GI Jane length going on, so keep your fingers crossed!
Also, Kurt's nephew Matthew is doing a project for school on Lymphoma. We were touched when he told us because it's just another example of how our friends and family have really rallied around us with support and interest throughout this whole diagnosis and treatment. We look forward to seeing how his project turns out.
I'm keeping busy with taking care of the house and catching up on things that I've missed or missed out on the last 6 months. In between rests, of course. I've been able to see some friends and catch up a bit, which has been nice. I'm even taking a floral design class once a week through the city parks department which has been a good, therapeutic way to do something creative and get out of the house. Some of you know that my mom was a florist so I thought I must have some natural talent in my genes somewhere! We'll see though. The picture here is my take-home from my last class. I'm also toying with learning to make jewelry, crochet and even a little wedding planning! Might as well take advantage of this time that I've been given.
That's it for now. I hope the new year is treating you all well! And I hope to see a lot more of you all this year.
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So good to hear from you Cassie, and to hear all the news from CA. We are thrilled with your progress, as I'm sure you both are too. I love that you are doing some creative things with your time, and talents--the arrangement was awesome! I know Carol loved the scarf you knitted also, and will think of the blessing you have been to her, as she tucks her chin down into its softness and warmth. We are continuing to pray for your daily improvement and the goal you have set for your friend's wedding date. I feel sure you'll make it!!
ReplyDeleteAlso, CONGRATS to Kurt on his new promotion and responsibilities at work. WOW!! You are amazing to come through this whole ordeal and still be excelling in your vocation Kurt, literally "not missing a beat."
We are proud of you both in the way you have handled all this, and God has blessed you, and I feel sure has special plans for your lives. Keep up the GREAT Attitude and Outlook (Uplook to Him)
We send our love and Congratulation,
Aunt Marlene and Uncle Don
Hi Cassie and Kurt:
ReplyDeleteWhat great news to see how far you have progressed. Getting out and about will keep those spirits up. It sounds as if Both of you are flying high these days. Congratulations!
Linda
It was good to read your update and see the pictures. What a cute couple you were at the parade! The flower arrangement is beautiful--it looks professional!
ReplyDeleteThe Richards are always on your side as you continue to heal. You and Kurt are a great example to all of us as you weather adversity that people usually face later in life. Your courage and grace are inspiring.
Congratulations on the job promotion, Kurt. I would say that 2010 is looking good for the two of you. May each step be a positive one in your journey together.
Love and hugs,
Shirley R.
P.S. This is my second attempt to post a comment. As my kids would say, I am electronically-challenged. :-)
It was great to read your all of your updates and am glad to hear you are back home in Strong Beach.
ReplyDeleteIt has been waaaay too long since we've spoke, texted, e-mailed, facebooked, sent homing pigeons, smoke signals or communicated in any other way - I'm going through Cassie withdrawals. I also miss you too Kurt (and sure, even Piper).
Lets get together soon... pretty please. Lily has been asking to see her aunt Cassie.
All our love - The Lutz's